An Incredibly Tough Week

So this past week has not gone entirely as one would hope......and considering currently I should be trying to relax, and under as little stress as possible....well......that hasn't really gone to plan!

So last Friday was my first scan this current FET cycle since starting the oestrogen pills and patches. I had done everything correctly, eaten everything that could possibly help, tried to continue as normal life as possible, and tried not to stress about things to much. However......guess what.........my fucking lining is still to thin!!!! FFS!!!!!! ARGHHHHHHH!!!!! It was at 4.7mm, the hope was I would be almost ready, and ready for transfer the following week! But nope!! That morning me and D were discussing the possible outcome, and both were a bit pessimistic about it, pretty much expecting the outcome we had. However I still was hoping, Im sure we both were, that just this once, perhaps things could be a little straight forward, but who are we fucking kidding, eh?! The palpitations and the anxiety were back this day too, a little concerned we mentioned it to the nurse, which fortunately was nurse K (the nice one), however her surprising response was to ask the pharmacist, as it wasnt a symptom she was aware of, you fucking what?!?! Ask the pharmacist?!?! I of course did, however we were pretty taken aback by this, I mean seriously?! Is that not her job????? If she doenst know, then she should fucking find out! Not get the patient tooo!!!!! GRRRRRRRR!!!!! Any how, off we went to pharmacy, and spoke to the lovely pharmacist, he felt that the symptoms were most probably due to the patches, and suggested the clinic check oestrogen levels and perhaps reduce the dose. This wasnt good news, I knew I needed the patches to be able to increase the lining. But thought I better go back and tell nurse K. She stated she would need to speak to the consultant, and would call me later in the day. So off I went back to work, painfully awaiting that phonecall. I was feeling pretty rough, spaced out, palpitations, and just generally off. My boss was a little concerned, and was very kind and supportive that day, which was much appreciated!

So the phonecall came, and the consultant too, hadn't come across these symptoms before, he stated it could either be due to the medications, or could be the stress of the situation. Nurse K stated he had given two options;
1) Abandon this cycle, if symptoms subside then we could assume it is due to the medications.
2) Persevere and re scan on Tuesday, though if symptoms worsen to stop and go and have investigations.

I chose option 2.

I continued to feel pretty crap that day, my mind was all over the place and I really couldn't think straight. One of our big bosses happened to be around who knows my situation, and for someone of his position, and importance, he is always surprisingly very kind and concerned about my fertility journey, always very interested and shows a lot of compassion and support towards the situation. My boss informed him of how I was feeling that day, he suggested taking my blood pressure which was 134/90, which is pretty high, especially for me! I have never suffered from high BP, in fact I am generally the opposite and usually have a low reading. I monitored it over the weekend, and by Monday it was more normal for me and was 108/80. When leaving work that Friday, I was still feeling pretty rotten and spaced out, and when backing away in the car park, in our relatively new car, I hit my sisters car!!!!! I burst into tears, came running in to tell her, apologising profusely. And bless her, she really couldn't give two shits about the car, but was hugely concerned at the state I was in! Fortunately both cars had only minor scratches!

The next day I was in work again, still feeling pretty rough, I had an awful nights sleep, kept being jolted awake by palpitations and feelings of anxiety. Late in the morning I had a panicked phonecall from my Gran, stating my mum had had a fall, she had no idea where she was, or how she was, but had a call from a member of the public who stated she had called an ambulance. I phoned our local emergency department who informed me she was en route, I met her there. Fortunately she appeared OK, she was alert and talking, but rather sore and shaken. The ambulance crew were concerned she had a TIA (mini stroke) and were also concerned for her well being, as she was very vague and looked unkempt. I gave them some history, informing them of her mental health problems etc. She was examined and fortunately had no injuries and they don't think she had a TIA, and advised her to to go to her GP on Monday. Me and my sister took her to the GP, who was great, I'm pretty sure our fertility clinic, could learn a lot from her, in regards to compassion and listening to the patient!! So the GP is referring her to neurology, falls clinic and also social services to hopefully get more support at home or to perhaps move her to a more supportive setting. It feels pretty crap that we're having to think down those lines given Mum is only 58! But hey just add it all to the pile of crap that I'm already dealing with!

So the next day, was the Tuesday, time for the scan. The silver lining of Fridays appointment was that the horrible sonographer was going on holiday for 2 weeks! Whoop whoop!! That means we don't have to deal with her for the rest of this cycle!! So this appointment we had a much nicer lady, who showed so much more privacy and dignity! It was a real treat! However the scan was still not great, it was now 5.6mm, so heading in the right direction but still not as good as required. So again off we went, feeling numb, and a little fraught, patiently awaiting another phonecall following discussion with the consultant. I was pretty much expecting him to say he would abandon, but to our surprise the nurse called to state that if I'm feeling OK to do so, then I could carry on until Friday, which I of course have agreed to do. The palpitations and anxiety were still around but had significantly reduced.

The following day I had an acupuncture session. The lady I see is so kind and caring, and bless her she really is taking this whole situation to heart!! She kept apologising that things aren't going to plan, and was very frustrated at the whole thing! It was a great session, alongside the acupuncture she did a facial/head and neck massage, and wow afterwards I felt great! I felt so relaxed and much more positive. Well that was until later that evening, when D arrived late home from work......
I was in the lounge, when I heard him come in shouting;

'don't panic I'm OK, but Ive been knocked off my motorbike!'

At this point I couldn't see him, my heart fell into my stomach, I immediately jumped up and ran to him, to find him looking pale, tearful, shaken and hobbling!! It was a pretty terrifying evening, discussing what happened, and my mind flicking through would could have happened! After a trip to our local MIU any breaks were ruled out, and he just has soft tissue damage to his foot and thigh. The beautiful bike however is pretty battered and will most probably be written off :( Which is pretty heartbreaking for D, its his pride and joy, and his escape, even for me too, on Sunday we had a lovely blast around together to clear our heads;

But anyway fortunately he is physically OK, so we must be very thankful for that, but it really did top off a pretty stressful past week!!! So surely things can only get better??!?!? Please tell me they cannot get any worse!!!!!

Well lets await the next scan and see..............

Beginning FET cycle #2 and arse patterns

OK so its been almost 2 weeks since my last post!

And in that time several things have happened! I intended to blog last Tuesday after my first clinic appointment of this cycle, but it turned into a busy day and then I worked long shifts for the rest of the week.

So whats been happening you might ask?! Well....

AF arrived! She came on the Friday, but it was after 12 midday so I had to start the buserelin the following Sunday. I immediately felt crap!! I mean literally within an hour I had a pounding head, and felt nauseous. And throughout this past week Ive been feeling very emotional again, very fatigued, nauseous and the past few days really light headed/dizzy, as if I'm in some sort of fog, and almost not real, its a very hard feeling and very difficult to explain, and not particularly pleasant! Its been a difficult week, but also reassuring that Im pretty sure its the drugs making me so emotional, and depressed, as last week when I was not on any drugs I felt fine! I had so much more energy, felt much more positive, and just generally more 'me!'

So anyhow, Tuesday I had my first scan of this cycle, D wasn't there this time. I told him not to come.....I wish I hadn't! Though there was no major reason for him to be there, other than to hold my hand! We knew this would be a very routine scan it was just to check that my ovaries are clear and everything was good to start the estradiol, which with AF almost leaving again, and the effects I was feeling from the buserelin, I was pretty certain all would be OK.......and it was!!! D wanted to come as he always does, but he is just about to start his new promotion, and whilst his workplace are very good about him attending appointments, we didn't want to take the piss, when it was unnecessary. And as it turned out, all was well, so there really was no 'real need' for D to be there, but my God was it awful sitting in that waiting room all alone, surrounded by couples! Even though I was pretty certain I wouldn't be getting any bad news and this was routine, I missed him so much! I missed him holding my hand, reassuringly looking at me, making me laugh, and just generally being my rock! Maybe I shouldn't be so spoilt! Im sure plenty of women attend appointments alone, but I'm not one of them and I don't want to be! I really am so lucky to have D, thats one great positive with this whole fucked up situation it has definitely brought us closer, it really does either make or break you!

The sonographer woman, was her usual 'happy' self *sarcasm* but as there was not much to look for, it was thankfully pretty quick, I then had to await the plan from the nurse, which I already had an idea  on from our last appointment. It was however still a long wait, and there was another couple there who I met once before, back before our first cycle when we had to go for our injection technique teaching session. It was kind of odd as it was only the day before when shopping in Sainsbury's Im sure I saw the husband of one of the other couples, which then gave the passing thought of wandering how those other 3 couples are getting on, whether they got their BFPs??? Well anyway this other poor  couple hadn't yet, they were talking to someone and I was ear wigging a little, to hear this was their second FET, having 1 failed fresh and 1 failed FET, so meaning unfortunately living where we are, they are now paying! So its not just me/us still waiting, still on this shitty journey, eh?! So anyway on to the nurse bit.....fortunately it was nurse K, now she is lovely, so much nicer than the other nurse, and actually shows some compassion and takes the time to answer questions. She told me I now had to go home take 4 estradiol pills each day, and also later an estradiol patch. Now the patches are 'fun' again *sarcasm! Not sure if anyone else finds this? But they are bloody uncomfortable! They really irritate my skin, and due to them needing to be on my arse, and the logistics of placing them there, D has to do them for me, he is having great pleasure in designing a pattern on my arse with them! Haha!

So as I said earlier nurse K is great at answering questions, and actually explained the process to me, so on the Tues I commence, patches and pills, I then have a scan Fri of this coming week, so 10 days later. If my womb lining is looking good, I will then stop the buserelin on the Sunday and start progesterone pessaries/suppositories, and the embryologists will thaw the embryos on the Monday, with the aim of culturing them on until the Friday, when they will hopefully, fingers crossed, implant one.

So I have seen my lovely acupuncturist once and plan on seeing her again on Tuesday, am also eating and drinking all the wonderful things I did last cycle. I am also back at work, and trying not to go sick to early this time, last cycle I had a month off, but I really did need it, I was in such a dark place then. I could almost let myself be again this cycle, I can feel it within me, I can feel that burn in my stomach, that dark cloud in my head, but I am fighting it, Im fighting it hard, and trying my upmost to not let it consume me. However it certainly hasn't been easy! It hasn't been easy at work either, lots of silly politics, which are really not helpful right now! I try my best to stay out of it, but I really do love my job, and I find it hard not to get frustrated and stressed by things in the office, but Im TRYING!!! Ive also had to deal with a few insensitive people too, people who I thought cared, but hey, forget them! I have sooooooo many good people in my life who really do care, I seriously don't need the ones who don't! Their loss eh?!

So thats pretty much it, thats where I am, I would like to say Im feeling positive, Im trying to be, I really am, but having been on this journey for so long, knowing what it entails, and the constant heartbreak we have endured, the hope I had is seriously diminishing, and that really isn't me, I am usually so optimistic, and on face I am, I am still wearing that signature smile, making people think that 'I'm OK' but really deep down, there is minimal hope left :( But hey, I guess we gotta just watch this space!





In other news, I am quite liking the idea of reviewing some things?! Anyone have any thoughts? The first item I want to review is a diary called Daily Greatness Journal it is quite expensive at £39.99 but it is huge! And for someone who is a stationary nerd and likes to be organised it really appeals. It has a weekly planner and is designed to be positive and instil good habits. It is not dated so can be started at any time, however Im going to wait until January, there is just something about starting a diary on the 1st of January :) So once I do and I have used it for a while I will of course do a more comprehensive review. In the meantime if anyone wishes to purchase, you can use this code to get 5% off RAF5UK

FET cycle #1 = FAIL

So today I have felt all manner of emotion; excitement, nervousness, anticipation, anger, sadness, negativity, positivity and now I almost feel numb......and why?? you might ask........well I'll tell you.........

So if you read my last blog post you will know that my womb lining/uterus lining/endometirum whatever you like to call it was not thickening as it should, it had actually reduced to 5.7mm, and whilst the consultant recommended stopping, they agreed to let me continue to today, doing everything I could to help it thicken.

So on I continued over the past few days, drinking beetroot kvass, pomegranate juice, raspberry leaf tea, kefir, eating brazil nuts, figs, and warm foods, not forgetting any oestrogen pills, patches or buserelin, and religiously checking off my chart. Also trying to relax as much as possible, and not get stressed about things. I was still feeling pretty tired so relaxing was actually quite easy. My emotions had gotten the better of me again though, Saturday was a good day, but Sunday was my birthday and whilst it was a beautiful day, and the sun shone.......

And we got to see the sea! I spent most of the day fighting back the tears, and not giving a shit that it was my birthday! Which is unusual for me, I usually love my birthday, though I did hate being 30 last year, just ask D, I usually make it last at least a week, and milk it for all its worth, haha!! Though this year I truly could not give a flying fuck! In fact I think it depressed me even more, I think it was just another reminder that I am not quite where I want to be, not where I envisaged myself, I thought at this age I would have several children, but I have none!! Ten years ago it was my 21st and my and D were jetting off to New York, if you'd have asked us then where we would see ourselves in ten years it certainly would not have been childless!!!

On Monday I seriously paid for being out for most of the day on Sunday, I was exhausted and the nausea and headaches had returned. This continued into Tuesday, but I was seriously looking forward to acupuncture....

Again she was very apologetic that my lining hadn't thickened, but was hopeful that she could help. She did 2x moxas this time, and something new......some very strange but bloody lovely facial/head massage, tapping type thing, which included pouring some sort of liquid onto my head, am not quite sure what she did, but it felt bloody lovely, and left me feeling so relaxed, positive and chilled. She told me to go home and relax the rest of the day, which I did apart from cooking up one of Emma Cannons leek and fennel soups from her book 'Fertile' which was bloody amazing! Very filling, nourishing and warming. I then spent the rest of the afternoon feet up on the sofa, followed by a very bubbly, lush bubble bath in the evening, complete with candles and followed by warm numeric milk (again from Emmas book) and a camomile tea before bed. So I went to bed feeling calm, relaxed and hopeful for the morning, trying to be positive. I didn't sleep hugely well, trying not to worry and stay positive, but there was always the constant niggle, the what if, and for some unknown reason, even though I haven't been there in ages, I kept thinking about work!!

Anyway I awoke in the morn, trying to remain calm and think positive. I text my friend K, who was also undergoing an appointment at the clinic today, and sadly she had a bad experience with the same idiot sonographer and nurse who I had bad experiences with. This seriously angered me, how dare they, how fucking dare they!!!!!

So I then make my way to the clinic, trying to calm myself, listening to some chill out ibiza tunes in the car on the way. After having issues parking I bump into K and her husband, which was bitter sweet, it was wonderful having a sneaky hug with one of my bffs prior to a big appointment, but heartbreaking to see the terrified look on their faces, knowing they have had to endure one of the pain staking appointments like I had earlier in my journey, and fearing what they had to come.

So leaving them, I then met D for our own appointment, sitting there waiting in the clinic room, holding hands, clammy hands, hearts beating fast, waiting impatiently in the of course running late clinic........in we go, with the horrible sonographer, blind open again which D kindly and abruptly pulled down, no dignity to be had of course whilst she waited for me to undress, then shoving the wand up my foo, and almost straight away.........'you've got thinner........4.7mm.' My eyes filled, my heart sank, and after my usual sort myself out in the toilet, we sat waiting, waiting for the outcome, so many thoughts going through my head, tears rolling down my cheeks, D holding me, trying to comfort me, waiting, thinking......'can I keep doing this??' 'here we go again' 'another abandoned cycle' 'what next?' 'more waiting?!?!' 

After waiting for some time, which is not usually a good sign, we were called in by nurse J. Great, we thought, both looking at each other, knowing what we are thinking, for fuck sake, we know this is gonna be bad news, and now we have to deal with this twat! But OMG, would you believe, for the first time ever, she actually showed us some concern and compassion!!! She reassured me I hadn't done anything wrong, its not my fault, I asked her why this had happened, and she felt it was because my liver was metabolising the drugs too quickly, and there was nothing I could do to correct this. I informed her of all I had been doing, including acupuncture, to which she told me it was all a load of crap, 'witchcraft' she even called it!!!! I obviously have chosen to ignore this and will most certainly continue! It really bothers me how medicalised and paternalistic this clinic is, are all clinics like this??? 

Anyway she continued to TELL us what the plan was, the reason we waited so long is because the consultant had reviewed my notes, which was great at least we didn't have to await a call. So the plan is; stop all current drugs immediately, then start a course of norethisterone tomorrow, to induce a bleed, once I start bleeding to call the clinic to get booked in for a scan, and restart buserelin the day after bleeding, if OK at the scan I will then recommence patches and oestrogen pills straight away! Wow!! I was actually pretty pleased with this, at least this time we don't have to wait ages for a plan.

So we left, we wiped our tears, and I actually was feeling somewhat positive, I went to my sisters we had a coffee and watched a film, but as the afternoon has gone on, of course my emotions are taking ahold again and am as I said earlier feeling a bit numb :/

I am also considering returning to work, I informed my boss of todays outcome and she's asked me my plan, she is going to check with HR to see if Im able to return before the end of my sick note which has another 10 days. I keep changing my mind on this throughout the day, in one breath I think it will be good to attempt to be 'normal' to have something else to be thinking about, but on the other hand Im a little worried that Im not quite there yet, I am still feeling nauseous, tired and headaches, and also my up and down emotions scare me, but hey, who knows getting back to work, might be good, it might be good to pull myself together and get on with it, this is what I do, this is what Im usually good at, Im usually good at putting that fake smile on and 'getting on with it' seeming OK but breaking inside. Hey we'll see! TBH its not really seemed to have had much benefit me being off work, its been kinda nice not having to worry about work, but also Im not used to dwelling on things, and I kinda hate that too!!!!

More Waiting....

So 5 days later and another scan.....

So this time it was a much more pleasant experience, well I'm not sure pleasant is the right word, I don't think someone shoving something up your foo, in a non romantic way is ever really pleasant! But none the less, it was much less awful! And that was because it was a different sonographer, whoop whoop!!! And my goodness what a difference! She stood behind the curtain to allow me to get undressed in private, she checked my D.O.B, she showed interest when I was telling her about all the interesting things I've been eating, and what a difference it makes just to be met by a smile and some dignity, it may seem small, but actually to the patient, it makes a huge difference. A lot of my anxiety lately have been surrounding clinic appointments and the awful staff we sometimes come across. Speaking of things I have been eating, last week following off loading on my blog post, I went raging down to sainsbury's, with the mentality of 'fuck you nurse, bloody well tell me there is nothing I can do to help thicken my lining' well this is what I came back with......

So at least no one can say I didn't try!! Ive also been using some of the recipes from the Emma Cannon book 'Fertile' Ive only briefly looked at it so far, but what I have seen and cooked has been delicious! Im also planning on spending some time this eve/tomorrow (depending on how I feel) batch cooking a load of soups, was hoping it would be for the 2ww but.....

This mornings appointment wasn't all good news, I went in with high hopes today, I have been resting, eating right (see above pic), using warm compress etc, but nope! Thats still not enough! My effing body really does like to play games! However its not terrible, my lining is 6mm at its biggest some areas are 5.5mm, so no transfer this week :( FET was originally planned for Wed. Today we were told this by a nice young nurse, who actually showed some compassion and concern at how emotional I have been, though she gave me reassurance that it is all normal with buserelin, unfortunately I seem to be very sensitive to the side effects, so we were sent home to await a call following a discussion with the consultant.

We left the hospital, D went back to work, I went to see my Mum, who surprisingly was actually quite supportive and concerned by the situation, I then went to see my Gran who I expected to be more supportive than my mum, but to my surprise really didn't seem to understand the situation, she did express her concern for me, but this was more towards the end of the visit, after spending about 30 mins of hearing her bitch about my mum! This has been a constant battle for years, my Gran is awesome, she really is an incredible lady who has been through some horrific times, but she seriously does not understand mental illness, and is really not understanding of my mum (her daughter) its a vicious cycle and a complex situation, so I shall not bore with the details on the blog, it is just another one of those situations which makes the whole infertility bullshit even harder to deal with.

Throughout both visits I had in the back of my head, what will they do now?? Will they continue maybe increase the oestrogen??? Or will they abandon??? Each time I come away still not knowing, forgetting to ask, what happens? what is the protocol???? Will they just keep going?? Keep pushing until my lining is thick enough??? Or is it like when they go for EC, and when not responding, they abandon??? Again no one has told us.....no surprises there!!

However, whilst at my Grans I received a phonecall.........and.........PHEW!!!! They are not going to abandon, I had to go back to the clinic to get some oestrogen patches, to use in addition to the pills and buserelin, and then return to the clinic on Friday for a scan, so again.......

..... WE WAIT!!!!!!!!!!