Tuesday 29 November 2016

ICSI Cycle #1

So May 2016 I started the pill, I had 2 months of this prior to starting injections in July.

So the day came for my first scan, both of us feeling nervous but also excited, we were very hopeful and felt that the odds were in our favour.... I mean logically we had a lot of good points;


  • both young, fit and healthy
  • D had sperm, it wasn't as if he had none
  • I had eggs, and nothing wrong with my uterus

So in we went feeling extremely hopeful! 

My protocol had been adapted due to me having high AMH levels (100+) so other than the pill I didn't have anything at this point to down regulate me.

I began the stimulation injection menopur at 75units. 

After 2 days I already was feeling bloated and nauseous, and also felt as if I was getting a cold. On day 5 I went for a follow up scan and already had 16 follicles!! SIXTEEN!!!! WOW! We were excited, but oh wait.....there was concern of me developing OHSS so they continued with the same dose and brought me back for a scan on the Wed, by this point I was beginning to feel quite emotional, maybe the drugs??? Maybe the situation??? 

On Wed they scanned me and were happy for me to continue and starting the down regulation drug cetrotide. I now had 2 injections to give myself each night, I was also still working at this point, so it was interesting trying to hide it at work! Some colleagues (good friends) knew and I was fortunate that they were extremely supportive. 

On the Friday I had another scan, not much had changed so they were happy that I was not going into OHSS. 

I worked the weekend and the Sunday, I was in horrendous pain lots of cramping and felt hugely bloated, my boss noticed and was concerned, as was my husband when I got home that evening, but I persevered and assured them that I was 'OK' but really I wasn't!

Another scan on the Mon, which was suppost to be egg collection week so I was now off work. No more follicles but also no growth in the ones that were there, so they decided to increase the menopur dose to 150units, with a scan again on Friday. Feeling a little dissapointed and unsure as to what was happening we continued through that week, me injecting myself each evening, feeling emotional, but physically I was feeling better, this concerned me, as surely if the follicles were growing I would be feeling worse?????

Friday came around and unfortunately I was right.......no further growth...they were going to 'abandon,' what an awful term! We HATE that word 'abandon' why not just stay 'stop' abandon sounds so aggressive, as if it is a choice and you are running away!

So anyway that hit us like a train, I burst into tears, which let to D burning into tears, which led to the nurse bursting in to tears! I felt like my world and all hope had just come down around me! We were not prepared for this..no one told us this could happen at this stage! I felt sick, scared and not knowing what to do with myself.....she sent us home to await news from the consultant after lunch time.

We went out to eat, sitting there in silence, just hugging each other not wanting to eat, not knowing what to say, but knowing we had each other. We came home and awaited the call.........

B the nurse called and told us to stop injecting, and come see the consultant on Monday. That was it, all she said....

That left us with so many questions, what does that mean?? Is that further options?? Is that game over??? WHAT??? WHAT NOW???

So all weekend, I struggled, D kept busy, but I I couldn't....I slept and cried, slept and cried. My boss visited me and was so kind, I put on a brave face, but was struggling, she knew.......she helped. I pulled myself together went to waitrose (shopping always helps!) got my paint brushes out and painted a chair! (Love Annie Sloan!)



However that was such a heart wrenching and devastating weekend, we were heart broken. We just weren't prepared for something to go wrong at this stage, the one thing we really hate about our clinic is the lack of information given, I am someone who needs to know EVERYTHING!! Good or bad! Thank God for Google! and Twitter!

So Monday came....the consultant was lovely, so kind, reassuring and positive. She told us they were quite bemused at why I had stopped growing, with my AMH level at 100 it didn't make sense, however it didn't mean game over at all, it just meant we had to try again but using a different protocol! 

However there would be a strong chance that I would develop OHSS on the next protocol, so they would do egg collection, and freeze the embryos, let me recover and then implant. So the success rate would be lower, but at least it wasn't game over! 

If only we were told that on Friday we could have avoided such a painful weekend, but hey this is the game of infertility....and so begin the agonising wait for the next batch to begin in November!

Thursday 24 November 2016

The Start of Our Infertility Jouney

So this post has been sitting in my drafts unfinished ever since I started this blog, the intention was to make this my first blog, now I am currently off sick and told to rest so here goes.....


So a little history.....

I guess I should talk about what is actually going on and the whole reason why I need to blog!

Well....

Me and husband D have been married now for 6 years, together for 11.

Kids have always been on the cards but we decided to wait until we bought a house, got married, I completed my degree etc.

I was on the contraceptive pill Loestrin but in October 2013 I had a breakthrough bleed (shouldn't have any bleeds whilst on Loestrin) I had finished my degree in September 2013 and we were planning to start TTC in March 2014 after our 'last big holiday' so we decided I would stop the pill in October and 'be careful' up until March when we would 'properly' start trying. Between October and March there were a couple of times in which we weren't quite so careful, due to lack of supplies......though nothing happened. Whilst we weren't to concerned as ideally didn't want to get pregnant then anyway, it did get my mind wandering.

We did however start trying in March.......during the holiday ;)

After my bleed in October I then didn't have another one until May, and then the following January! And after trying since March we knew something was wrong....
We did everything right too, maybe too right! I quit smoking, didn't drink any alcohol what so ever (accept on a cheeky break away to Berlin in October 2014) ate really healthily and exercised regularly, I treated my body as if I was already pregnant.

December 2014 I wasn't feeling quite right, I had tender boobs, feeling nauseous and fatigued, could this be it? I began to get excited, thinking maybe....?! I therefore did a pregnancy test......but it was a big fat NO!! I talked with my sister who had a pregnancy at 16 ending in miscarriage and had very similar symptoms to her, she too did a pregnancy test too which was negative, she went to her GP who did a blood test and found her to be pregnant! ....some hope?! I therefore then went to my GP who agreed to do a blood test, but.......NO!!! A week or so later was when I had a period, which was probably the symptoms I had been feeling.

From then I had more regular periods, well give or take about 10 days each side!! But at least I was having them! We continued to try but to no avail.

We had agreed we wouldn't track ovulation or make things to 'clinical' we wanted to keep the magic between us, our sex life has always been passionate and loving and we wanted it to stay like that, we didn't want sex to become just about making a baby. However me with my medical brain and needing to know everything started researching...I downloaded an app to track my cycle and how I was feeling etc, we agreed that I could know when I was ovulating but wouldn't tell D.

We used the app for several months but with my periods being irregular it was hard to track. I went to my GP in the late spring but they wouldn't refer us to a fertility clinic until we had been trying for 2 years which was in the October. He did however agree to do a scan due to me having heavy and painful periods. The scan was in the June (little did I know this would be the first of MANY!!!).  The scan showed signs of PCOS however this could not be diagnosed by a scan alone. I then went for a blood test, which confirmed I had PCOS I also was showing raised TFT (thyroid) levels which is something that had been picked up the previous year when I had pancreatitis.

Looking back PCOS did fit, I have had many symptoms, though not all, and typically do not fit all the boxes! I am not obese though I do find it very hard to lose weight and am on the larger size of average being a UK size 12-14, I eat healthily and exercise regularly the moment I stop, weight gain is probably faster than someone without PCOS. I also suffer with a bloated stomach, which is horribly embarrassing, and quite heart wrenching when insensitive fuckwits decide to state that I look pregnant!!!

So we had an explanation for infertility but still not quite at 2 years for a referral to the clinic, however the GP was great and sent D for semen analysis in preparation. The clinic required 2 samples for referral. So D went ahead and did his thing ;p .........The results were great he had a higher than average sperm count (or so we thought), he was jumping for joy, we both were, though now it was on me, it was all my fault......

October 2015 came around and we had our first (of many!!!) appointment at the fertility clinic, feeling nervous and anxious and not sure quite what to expect.

The nurse was great, however she had some shocking news for us.....whilst D had high sperm count, the GP failed to mention that the quality was poor, low motility, morphology etc. That hit us like a train, him especially. I also had another scan at the clinic to confirm PCOS, it also showed that my left ovary was enlarged. Along with more blood tests which showed my TFT to now be normal!

The next stage was for me to have a HSG exam to test to see the patency of my tubes, and so commence the agonising journey of constant wait and disappointment that is infertility! At our clinic the HSG had to be performed within 10 days of day 1 of my period, and bleeding had to have stopped for 24 hours, the clinic only performed the HSG on a Tues/Wed,  it took 5 months for me to fall on the right day and them not have a training day/leave etc, at the time this was agonising...the wait..constant disappointment...little did we know this was minimal compared to what was to come.

So March 2016 and the HSG appointment finally happened, D happened to be really ill at the time, I was very stoical about it and was going to go on my own, I have a lot of friends and an amazing sister but I hate to admit when I need someone, and hate to put on others.....however my boss who I also now consider one of my closest friends (a mother figure) is quite intuitive and very similar to myself, worked this out and insisted on coming with me, I didn't want to admit it at the time, but I was actually very greatful! So I went in for the exam, having been seen in my hospital gown by my boss! Haha! (Though I didn't really care ;) ) PAINFUL!! Fuck me that was painful! And I think a few Fucks and inappropriate humour flew out of my mouth! I laid there with the screen behind me....I couldn't help myself and watched it, with my medical but no experience in radiography mind, the right side flowed beautifully...but the left... now the left looked different, nothing was happening, I asked them if there was an issue with the left but they wouldn't tell me until my appointment a few weeks later, however I knew....

So a few weeks later we went for our follow-up appointment, and low and behold I was correct, I also had a blocked left fallopian tube. So along with Ds issues this meant that I couldn't go down the usual treatment route for PCOS and have metformin/clomid, the only option was to go straight for ICSE.

So scared.....excited....hopeful....not really knowing what to think/feel......thats what we did!

'The batch' that we would be in would be August 2016.....that post will be coming soon!!